THE parents of a little girl who died of a brain tumour have been made trustees of a lifesaving charity after raising almost half a million pounds for charity.

Louis and Anna Brooks have been named as trustees of Funding Neuro, a charity set up to find a cure for neurological conditions.

In November 2014, the couple’s daughter Daisy lost her life to DIPG, or diffuse intrinsic pontine glioma, on the day after her seventh birthday.

Described by her dad as a “brave and caring girl who never complained about anything”, Daisy was one of the first patients in the world to try an innovative new treatment for brain tumours developed by Professor Steven Gill, called convection enhanced delivery (CED).

This treatment allowed Daisy, from Bures, to enjoy a better quality of life and gave her some last precious moments with her family.

Since her passing, Mr and Mrs Brooks formed the Do It For Daisy Trust and have raised more than £300,000 for Funding Neuro as well as more than £150,000 for other charities including East Anglian Children’s Hospice.

The huge amount of money, raised by hosting events like fancy dress walks and selling Christmas cards with Daisy’s drawings on them, will allow the charity to run a clinical trial aimed at making Professor Gill’s CED treatment available for all children that need it.

Sharon Kane, Funding Neuro’s CEO, said: “The strength and generosity the Brooks family have shown during challenging times will forever be an inspiration to the staff, supporters and all associated with Funding Neuro and who know Daisy’s story.”